My Community

9-year-old boy
Growing up with Gaucher
Benefits from earlier generations
Part of a supportive community
Gaucher: Nothing to Hide
Cody is a nine-year-old boy from Calgary who sees Gaucher disease as something that makes him unique. His mother, Anita, reinforces the point by telling the story of how Cody showed his infusion port to the rest of his kindergarten class for show-and-tell. She explains she has always encouraged him to view his condition as just another part of him, not something to be ashamed of, or to hide.

“In my school I think I am the only one that has it.”
Growing up with Gaucher
For the most part, Cody does perceive his condition this way - Read story>>
Benefiting From Earlier Generations
Cody has been receiving infusions for most of his life. Read story>>
A Supportive Community
Anita cites the support and services available through the NGF, as well as through the Alberta Children’s Hospital and Sanofi Genzyme, as key Read story>>
What the Future Holds
Looking further into the future, Cody is not certain what he wants to do when he grows up. Read story>>

Check back soon to read more about Cody.

Patient Stories are examples based on aggregate medical data. The characters represented are not actual Gaucher patients. Their stories are inspired by those of real Gaucher patients.