Privacy Policy

Introduction

GENERAL

This Privacy Policy is designed to tell you about the practices of Sanofi Genzyme Canada, a division of sanofi-aventis Canada Inc. (“Sanofi Genzyme”, “we” or “us”) regarding the collection, use, and disclosure of Personal Information (as defined below) via the Gaucher Connection website (the “Website” or “Website”). Specifically, this policy describes (i) the types of Personal Information collected on this Website and the manner of collection, (ii) the use of that Personal Information, and (iii) its transfer and/or disclosure. It also describes the measures we take to protect the security of the Personal Information. In addition, we tell you how you can reach us to answer any questions you may have about our privacy practices. Please be sure to read this entire Privacy Policy before using, or submitting Personal information. Your use of the Website is subject to this Privacy Policy and the Website’s Terms of Use.

Except for Sanofi Genzyme’s applicable legal requirements and duties detailed in the Terms of Use and for the Purposes detailed herein Sanofi Genzyme and its affiliates will not have access to any of Members’ Personal Information. In addition, employees of Sanofi Genzyme and of its affiliates and service providers who require it for the purposes of their duties will only have access to aggregated or unidentifiable information for the Purposes outlined below.

Please check this Privacy Policy frequently for updates by checking the date of the “Last Updated” at the top of this Privacy Policy. We may change or update all or parts of this Privacy Policy at any time; in that case you will be notified via a notification on the Website. Please check back from time to time so you are aware of any changes or updates to this statement. The Privacy Policy which in each case shall apply to your Personal Information shall be the version posted as of the point that the applicable Personal Information was collected on our Website.

Purposes For The Collection, Use And Disclosure Of Your Personal Information

4. We collect, use and disclose your Personal Information for the following purposes: performance and improvement of the Website, gathering data on the Website navigation, assessing Members health behaviour further to their participation to the Website and for any additional purposes identified at the time of collection, and otherwise as permitted or required by applicable law (the “Purposes”).

5. Generally stated, by “Personal Information” we mean any information about an identifiable natural person, as further defined in applicable privacy laws. Personal Information may include but is not limited to your name, address, telephone number, date of birth, and email address and purchasing information relating to the Website.

6. Personal Information is collected during your visit to the Website as follows:

to authenticate users and register Members further to the acceptance of the Website’s Terms of Use;

to manage the “My Health Page”, “My Calendar”, and “My Test Tracker” tools and features, activated if you voluntarily submit your personal health information;

with your prior permission, to send notifications and Website newsletters to users relating to the Website and upcoming events;

to respond to your questions or requests;

as permitted by, and to comply with, any laws and regulations and

for any other purpose to which an individual or user consents.

Except for any log files and cookies to the extent set out below, if you are simply visiting our Website without reserving your spot or enrolling, we do not collect any of your Personal Information.

7. By accepting to become a Member of the Website, you accept to provide us with your Personal Information (such as your name, address, telephone number, email address, as well as personal health information to create and manage your profile). This information will be used, without limitation, to create your membership, correct your membership, to communicate with you as permitted and/or if required, offer to you relevant information, services in relation to the Website. By providing your Personal Information, you consent to the Website using the information for the Purposes specified herein.

Information We Share

8. We do not disclose Personal Information about our Website visitors or Members, except as described herein, and as otherwise permitted or required by applicable law.

9. Third-party service providers: Sanofi Genzyme has retained third-party service providers to provide certain services and assist with the daily operations and maintenance of the Website, these services include

- logistics/technical and level support,

- testing and validation, hosting, management of the Website and

- the collection and processing of Members Personal Information in relation to the Purposes

(collectively the “Services”).

These third-party service providers may have access to Personal Information, solely for the purposes of providing these Services. When we transfer or provide access to Personal Information to third party service providers, we contractually ensure that such providers provide a high level of Personal Information protection, including requiring that they respect this Privacy Policy and are responsible for the security of the Personal Information. They are not authorized by us to collect, use or disclose the Personal Information except as necessary to perform the Services on our behalf in relation to the Website as described herein, or to comply with legal requirements.

10. The collection, use, and disclosure of information contemplated in this Privacy Policy may involve a transfer of the information to jurisdictions located outside your country of residence that may not have equivalent laws and rules regarding personal information. The reasonable contractual measures we may take to protect Personal Information while processed or handled by these third parties are subject to applicable foreign legal requirements, for example lawful requirements to disclose Personal Information to government authorities in those countries.

11. We reserve the right to transfer any Personal Information we have about you in connection with the sale or transfer of all or a portion of our business or assets or rights relating thereto. Should such a sale or transfer occur, we will request that the transferee use and disclose Personal Information you have provided through this Website in a manner that is consistent with this Privacy Policy.

12. The Website is not intended to solicit adverse experience for Sanofi Genzyme products or products of other companies. As a Member of the Website, if you provide information about an adverse experience while using any of Sanofi Genzyme’s products, we may use the information you provided to submit reports to Health Canada and/or other relevant regulators. We may be required to contact you and/or your health care professional for further information. You understand that in order to comply with the law, we may not be permitted to meet your request to amend or remove Personal Information you provided to us or a third party regarding an adverse experience while using any of Sanofi Genzyme’s products.

Cookies And Logfiles

13. Information we collect automatically may include information, such as your IP address, domain name, web page, the length of time spent on the site and/or a page, and the pages accessed while visiting the site, which, to the extent such information is identifiable with you, is Personal Information. We collect this Personal Information through “log files” and “cookies.” Log files are small text files that websites automatically create when a user visits a site. This information collected through log files is stored on the server on which the website is hosted. A cookie is a tool that enables us to track and target your preferences. They help us to learn, for example, how many new visitors the site is getting, and to identify site features in which you may have the greatest interest. Cookies and log files may enhance your online experience by saving your preferences while you are visiting a particular page. They thus help us to provide you better designed and personalized services. Like many companies we also aggregate the Personal Information we collect automatically. The cookie will be stored on your computer's hard drive until you remove it. We may also use temporary or “session” cookies to help you use this Website. These temporary cookies will expire when you leave the Website.

14. If you want to stop using the cookie functionality of your browser, the “help” portion of the toolbar on most browsers will tell you how to stop accepting new cookies, how to be notified when you receive a new cookie, and how to disable existing cookies. Remember though, without cookies, you may not be able to take full advantage of all our Website features. Some of our business partners or the owners of websites that link to our Website may also use cookies, however, we have no access to, or control over, these cookies and do not accept any responsibility for their practices.

Links To Other Websites

15. Occasionally we provide links to other third party websites for your convenience. These sites operate independently from this Website and are not under our control. These sites may have their own privacy practices, notices or policies in place, which we strongly suggest you review if you visit them. Without limitation, we are not responsible for the content of these sites, any products or services that may be offered through these sites or any other use of these sites, nor for any Personal Information processing and privacy practices associated with such sites.

Records Retention

18. Your Personal Information will only be retained as long as needed to fulfill the relevant Purposes. The file containing your Personal Information will be made available to the authorized employees, contractors or agents of Sanofi Genzyme who need to access the information in connection with the Purposes. The Personal Information will be held primarily in an electronic database.

Security

19. We maintain appropriate administrative, technical and physical safeguards to protect Personal Information against accidental or unlawful destruction, accidental loss, unauthorized alteration, unauthorized disclosure or access, misuse, and all other unlawful forms of processing of the Personal Information in our possession. When you provide Personal Information online and/or through the Website Registration Form, such as when you participate in a survey, we use encryption on the Internet which is industry standard for this type of information — Secure Socket Layer (SSL) technology — to help protect the information that you provide. This Internet encryption standard scrambles Personal Information as it travels from your computer to our server. You will know that you are in a secure area of our website when a lock icon appears on your screen that the “http” prefix of our URL address changes to “https.” The “s” represents “secure.”

Your Rights

20. You have certain rights to access and rectify your Personal Information contained in the file held about you and in order to exercise this right, or if you have any questions, comments or concerns about this Privacy Policy, you may use the contact information provided below in to the “Contact Us” section in order to contact us. If the Personal Information collected is incorrect, inaccurate or outdated, we will correct such information within a reasonable period of time.

21. We hereby agree to respect and observe the provisions set forth in applicable Canadian federal or provincial legislation regulating the protection of personal information in the private sector. To the extent there is additional protection afforded to you, pursuant to any such applicable privacy legislation, and same is not set forth herein, we agree to take such measures to give full effect to such additional protection.

How to Contact Us

22. If you have any questions, comments or concerns about our privacy practices, including our practices and policies in relation to our use of service providers, or want to have access to and have your Personal Information corrected, please contact sanoficanadaprivacy@sanofi.com.